Heaven welcomed a new angel this week. Zachary Charles Jones went to be with our Lord Sunday morning. Blair and Keri were by his side and he went very peacefully. Please pray for the Jones family during this unimaginably difficult time. Thank you all for your support and love through the last several months.
You can find obituary and funeral arrangement information on the following website:
www.scanioharperfuneralhome.com
Wednesday, January 2, 2013
Thursday, November 29, 2012
What Zach has been up to...
Thank you all for continuing to remember Blair, Keri, Sydney, and baby Zach in your thoughts and prayers. Zach is enjoying all of the constant snuggles and kisses he is receiving since coming home from the hospital. He is such a good and happy baby and has already stolen everyone's hearts (especially mine). Blair, Keri, and Sydney are LOVING having him home! Sydney is an exceptionally helpful and loving big sister. She loves her baby brother so much.
Zach has been a busy little guy the past few weeks. Many friends and family have come to visit and hold him. He has already been to church, library story time, Sydney's school, the lake, Chipotle (his mommy's favorite lunch spot), Jason's Deli, and the Zoo (Sydney's request). He also cooperated for 3 professional photo shoots! He really enjoys looking at the Christmas tree lights, his rainforest crib toy, and star projector night light. His 1st Thanksgiving was very special as he was surrounded by many members of his family.
Enjoy these beautiful pictures.......
Zach has been a busy little guy the past few weeks. Many friends and family have come to visit and hold him. He has already been to church, library story time, Sydney's school, the lake, Chipotle (his mommy's favorite lunch spot), Jason's Deli, and the Zoo (Sydney's request). He also cooperated for 3 professional photo shoots! He really enjoys looking at the Christmas tree lights, his rainforest crib toy, and star projector night light. His 1st Thanksgiving was very special as he was surrounded by many members of his family.
Enjoy these beautiful pictures.......
Thursday, November 1, 2012
HOME!!!
Hello all! There are several updates from this week...
First, I am so happy to announce that after more than 3 months, Blair, Keri, and Sydney were able to welcome Zachary HOME Wednesday!! He is adjusting very well to his new surroundings.
Blair and Keri were introduced to Dr. Kane who oversees the Scott and White pediatric hospice program. After reviewing Zach's report and performing an examination, he recommended they enroll Zach into this program. Blair and Keri have known that Zach has an incurable neuromuscular disorder and that their time with him may be short but to have it reconfirmed was emotionally tough. Blair and Keri were really impressed with Dr. Kane and his team and consider it a blessing that they have come into their lives. Blair and Keri's plan is to give Zach adventure and joy and cherish every single moment they have with him.
There is still no news on the muscle biopsy that was taken in September.
Please join our family in saying prayers of praise that Zach was able to come home to be with his family and continued prayers for this transition.
First, I am so happy to announce that after more than 3 months, Blair, Keri, and Sydney were able to welcome Zachary HOME Wednesday!! He is adjusting very well to his new surroundings.
Blair and Keri were introduced to Dr. Kane who oversees the Scott and White pediatric hospice program. After reviewing Zach's report and performing an examination, he recommended they enroll Zach into this program. Blair and Keri have known that Zach has an incurable neuromuscular disorder and that their time with him may be short but to have it reconfirmed was emotionally tough. Blair and Keri were really impressed with Dr. Kane and his team and consider it a blessing that they have come into their lives. Blair and Keri's plan is to give Zach adventure and joy and cherish every single moment they have with him.
There is still no news on the muscle biopsy that was taken in September.
Please join our family in saying prayers of praise that Zach was able to come home to be with his family and continued prayers for this transition.
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| Here he is trying to crack a smile. Such a sweetie! |
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| GOING HOME!! (Z is wearing his costume since he came home on Halloween) He looks so cozy! |
Thursday, October 18, 2012
Updates and Pictures
I appologize it has been a while since the last update. Zachary has recovered fully from surgery. Blair and Keri have not received the results from the biopsy but anticipate hearing something by the end of the week. There has been little improvement in Zach's muscle tone and movement so they are really hopeful for answers. He developed a cold after surgery and it took a couple of weeks for him to recover. He was receiving oxygen while he was sick but he is back to breathing on his own again. In researching the cause for Zach's heart rate drops, he was evaluated by an ear, nose, and throat specialist. They determined he has a condition called Laryngomalacia, which means he has a "floppy" airway/larynx. Treatment for this condition will be decided after Blair and Keri receive biopsy results and have a better understanding of his overall health.
There is hope of bringing Zach home next week if his breathing and heart rate stay stable.
Thank you for your continued concern and prayers.
Here are a few updated pictures of our precious Zach....
There is hope of bringing Zach home next week if his breathing and heart rate stay stable.
Thank you for your continued concern and prayers.
Here are a few updated pictures of our precious Zach....
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| Little Aggie! |
Thursday, September 20, 2012
Quick Surgery Update
Zachary's surgery went smoothly on Wednesday. His recovery is going very well. We ask for continued prayers that his heart rate drops be resolved so Blair and Keri can bring him home from the NICU.
Thank you so much for your continued prayers for our sweet Zachary. We will never be able to express how much it means to our family.
Thank you so much for your continued prayers for our sweet Zachary. We will never be able to express how much it means to our family.
Monday, September 17, 2012
Prayer requests
There have been no significant changes with Zach since the last blog update.
The purpose of this update is to ask you all to lift Zach up in your prayers this week. He will be having an invasive surgery this Wednesday the 19th where doctors will be taking a muscle biopsy from his leg for more testing. A specific diagnosis has still not been confirmed by other testing and Blair and Keri's hope is that they will get more answers from this test regarding Zach's lack of muscle movement. There is a very broad range of types and severity levels under the Muscular Dystrophy "umbrella" and this test usually provides a better understanding of what to expect. Zach will also have a couple of other minor procedures while under anesthesia.
Many have asked when Zach may get to come home from this hospital. Blair and Keri do not know at this time. Zach has accomplished many of the milestones that are necessary to come home, such as maintaining body temperature, feeding, and breathing without assistance. His doctor sounds very hopeful and has discussed the possibility of exiting the NICU in late September or early October. However, he continues to have heart rate drops and his doctor is trying to determine their cause.
Thank you all for your concern, love, and prayers.
Specific Prayer Requests:
*Doctor's and nurses performing Zach's surgery will make all the best decisions about his health and safety
*Zach's body will respond well to anesthesia and surgery
*Zach's speedy recovery and minimal pain
*Comfort, strength, and peace of mind for Blair and Keri
*The results from this test will provide Blair and Keri clear answers about Zach's diagnosis
The purpose of this update is to ask you all to lift Zach up in your prayers this week. He will be having an invasive surgery this Wednesday the 19th where doctors will be taking a muscle biopsy from his leg for more testing. A specific diagnosis has still not been confirmed by other testing and Blair and Keri's hope is that they will get more answers from this test regarding Zach's lack of muscle movement. There is a very broad range of types and severity levels under the Muscular Dystrophy "umbrella" and this test usually provides a better understanding of what to expect. Zach will also have a couple of other minor procedures while under anesthesia.
Many have asked when Zach may get to come home from this hospital. Blair and Keri do not know at this time. Zach has accomplished many of the milestones that are necessary to come home, such as maintaining body temperature, feeding, and breathing without assistance. His doctor sounds very hopeful and has discussed the possibility of exiting the NICU in late September or early October. However, he continues to have heart rate drops and his doctor is trying to determine their cause.
Thank you all for your concern, love, and prayers.
Specific Prayer Requests:
*Doctor's and nurses performing Zach's surgery will make all the best decisions about his health and safety
*Zach's body will respond well to anesthesia and surgery
*Zach's speedy recovery and minimal pain
*Comfort, strength, and peace of mind for Blair and Keri
*The results from this test will provide Blair and Keri clear answers about Zach's diagnosis
Sunday, September 2, 2012
Updates and Pictures...
Just a few quick updates from an encouraging week....
First, Zach was moved from his isolette (incubator crib) to an open crib! This means that Zach's body is now capable of regulating a healthy temperature on its own. Also, he was taken off of all oxygen assistance... He is breathing entirely on his own now!! Zach has done so well with his feedings, he is now taking all of them by bottle! He has a little trouble from time to time with his breathing while he is taking a bottle but over all he has been very successful with all of these transitions.
Blair and Keri are able to hold Zach daily and feed him his bottle. He loves to be swaddled and cuddled by his mommy and daddy! Blair and Keri are really enjoying the opportunity to bond with their little man. Sydney LOVES her baby brother and gets to visit him daily. She is such a big helper... baths, diaper changes, temperature checks... She's willing to help with it all!
As always, Blair and Keri are beyond thankful for all of your prayers, messages, phone calls, and generous offers. They feel so blessed to have such a wonderful support system during this time in their lives and appreciate each and every one of you.
Prayer requests:
*Continued success with bottle feeding
*Eventual success with nursing
*Continued success with breathing
* Blair & Keri may have strength & courage to face each new day
First, Zach was moved from his isolette (incubator crib) to an open crib! This means that Zach's body is now capable of regulating a healthy temperature on its own. Also, he was taken off of all oxygen assistance... He is breathing entirely on his own now!! Zach has done so well with his feedings, he is now taking all of them by bottle! He has a little trouble from time to time with his breathing while he is taking a bottle but over all he has been very successful with all of these transitions.
Blair and Keri are able to hold Zach daily and feed him his bottle. He loves to be swaddled and cuddled by his mommy and daddy! Blair and Keri are really enjoying the opportunity to bond with their little man. Sydney LOVES her baby brother and gets to visit him daily. She is such a big helper... baths, diaper changes, temperature checks... She's willing to help with it all!
As always, Blair and Keri are beyond thankful for all of your prayers, messages, phone calls, and generous offers. They feel so blessed to have such a wonderful support system during this time in their lives and appreciate each and every one of you.
Prayer requests:
*Continued success with bottle feeding
*Eventual success with nursing
*Continued success with breathing
* Blair & Keri may have strength & courage to face each new day
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| PRECIOUS!(Not much else to say about that) |
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| Zachary's new crib |
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| Daddy and his boy |
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| Daddy with his two blessings |
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| Doc Sydney (Cutie-pie!) |
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